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Collaborating with people with lived experience

Aug
2
2017

Finding the right people to ask the right questions: new survey on young people’s mental health  
by

Thomas KabirTho

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May
25
2017

Using Lived Experience in Evaluating Mental Health Peer Support
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This essay was originally published as the afterword to the early research findings of the evaluation of the Side by Side programme. In it the researchers who used their lived experience of mental health problems and peer support whilst working on the evaluation reflect on how including that expertise from experience strengthened the research. 

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Apr
12
2017

Our Evaluation News

 

Over the last few weeks we’ve been giving our website a bit of a spring clean. As part of that we’ve added a new page showcasing the work we do for partner organisations including our work on evaluations. This is a growing part of what we do, helping other organisations to understand what impact their work is having and how it can be improved.

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Jan
4
2017

Expertise from Experience in Peer Review – Ryan’s Experience
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Earlier in the year MHRUK asked for our help in reviewing applications for three PhD Studentships. They wanted to strengthen the peer review process by including reviewers who could contribute their expertise from experience. We asked Gary, Dolly and Ryan to reflect on their experience of acting as reviewers, and we publish their blogs here.

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Jan
4
2017

Expertise from Experience in Peer Review – Dolly’s Experience
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Earlier in the year MHRUK asked for our help in reviewing applications for three PhD Studentships. They wanted to strengthen the peer review process by including reviewers who could contribute their expertise from experience. We asked Gary, Dolly and Ryan to reflect on their experience of acting as reviewers, and we publish their blogs here.

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Jan
4
2017

Expertise from Experience in Peer Review – Gary’s experience
by

Earlier in the year MHRUK asked for our help in reviewing applications for three PhD Studentships. They wanted to strengthen the peer review process by including reviewers who could contribute their expertise from experience. We asked Gary, Dolly and Ryan to reflect on their experience of acting as reviewers, and we publish their blogs here.

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Dec
16
2016

McPin Methods
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event-image-notes-and-coffeeThe 30th of November saw the first of what we will hope will be a series of methods workshops. It brought together over 70 researchers to discuss how to integrate ‘lived experience expertise in mental health research teams’. The event was massively oversubscribed and if the fact that we had to cut short discussions before we were physically kicked out of the venue is any guide, it succeeded in its aim of stimulating debate and the sharing of ideas.

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Dec
16
2016

Research in 2016
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research-image-codesign-is-vitalTo mark the end of 2016, we’re taking a look back at some of what the McPin team has learned over the past year.

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Sep
30
2016

Influencing the debate – peer research in academic journals
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our-news-image-survey-and-dictaphoneA new special edition reporting findings from the Viewpoint survey was published in July. It includes a paper on our qualitative research into mental health discrimination experiences which was co-authored with four peer researchers. We reflect on the importance of experts by experience being named as authors, and why they are so often absent from peer reviewed journal articles.

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Jul
25
2016

Getting our Report Card – asking people what they think of you and acting on their responses, the Your Experience in Mind Survey
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Guest Blog by Madeleine Musgrove, Research and Evaluation Officer, Mind

Mind have been workiYour Experience in Mind pic 550x356ng together with the McPin Foundation since 2014 to evaluate the experience of people using our federated local Minds through the annual ‘Your Experience in Mind’ survey.

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Jun
30
2016

Why did I take on the work with the McPin Foundation?
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featureIn March this year I took on an exciting opportunity: working with The McPin Foundation as a Peer Project Assistant on a pilot scheme entitled ‘My Story, Our Future’. We will be exploring the stories of people who have themselves used or supported others accessing Early Intervention for Psychosis (EIP) services. 

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Jun
9
2016

Peer Research and Complex Needs: A Mental Health Perspective
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Read a new blog about how research on people with complex needs are using an approach that we champion at the McPin Foundation – peer research. Written by Agnes, a senior researcher in our team, it looks at some of the challenges and benefits of peer involvement in research. It was written for Revolving Doors, a charity that supports people with complex needs including mental health issues. We are really proud to support their work exploring the role of peer - otherwise known as experts by experience - contribution to research.

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Oct
21
2015

Getting to know Linda Gask through her memoir; “The Other Side of Silence: A Psychiatrist’s Memoir of Depression” – a book review and audio interview
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We profile a book written by a psychiatrist, academic and person with depression. Linda Gask has written a memoir that explores what it is like to live with depression, and we have interviewed her about the role of depression in her research career. We know Linda because we are working with her on a study about collaborative care. She is keen that her book can be used to reduce stigma and educate others about depression.

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Jul
3
2015

Reflections from working on an evaluation project: Your Experience in Mind
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We are keen to look at new ways of involving mental health service users and carers in research. Part of our commitment to developing new approaches has been to investigate the things that have worked well and not so well about the methods we have tried in our own research and evaluation studies. We will publish a series of methods papers describing our work. Our first methods paper describes the 'Survey Champion' approach used in an evaluation of Local Minds.

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Jun
1
2015

Reflections from 10 years of service user and survivor research event
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On Monday (1st June, 2015), St George's University of London celebrated 10 years of doing service user and survivor research with a fantastic day of discussions attended by many inspirational leaders in mental health research, from a lived experience perspective. Three of us from the McPin Foundation attended. In one of the sessions, Sarah Carr, Peter Beresford, Diana Rose and Jayasaree Kalathil reflected on the place of collaborative and survivor research in Universities. Is it safe in universities?    

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Dec
2
2013

Does service user involvement in research make a difference?

A major interest of the McPin Foundation is how service user and carer involvement in mental health research, reaching beyond taking part as participants, improves any project. It is a topic that is of interest to research funders as well, with programmes of research being commissioned by the NIHR to answer this question.

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Nov
22
2013

Doing PPI better: why we are always learning
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Last week, I attended a fantastic conference on Patient and Public Involvement in Exeter, organised by the South Peninsula CLAHRC.

The conference was a very inspiring event with a wide variety of researchers, practitioners and people who have used health services and are engaged in Patient and Public Involvement (PPI) in research.

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