Information and Psychosis


A summary of our findings can be found here.

What was this research?

This project included focus groups and one-to-one interviews with a total of 27 service users with experience of psychosis and 16 carers. The project aimed to support the work of Imperial College Health Partners who have developed a psychosis pathway and are working locally to improve outcomes for people with psychosis. This research aimed to establish the information needs of those affected by psychosis, particularly those from BME communities, during the first phases of their help seeking journey.


 Why was this research important?

Information is known to be an important part of the delivery of mental health care. The Department of Health operates an information accreditation scheme to help the public manage how they review and appraise information, assessing for reliability and quality. Large organisations such as Mind and Rethink Mental Illness have all their information leaflets accredited. We wanted to know:

  1. Where people who are experiencing psychosis or their family / carers have tried to access information
  2. If they haven’t found the information they needed, where they would like to access it
  3. The type of information people are looking for
  4. Whether, or not, people are able to find the type of information they were looking for

What did we do?

We conducted 4 focus groups with a total of 19 service users and 7 carers, as well as 8 interviews with service users and 9 interviews with carers to find out about their experiences of trying to find information about psychosis.

After we had collected this data and identified some common themes, we then presented these to people who had taken part in the project at one of two workshops, and participants were able to feedback and help us to identify future actions. A total of 8 service users and 9 carers were involved in these feedback workshops.


What is the current status of the project?

We have completed the study and provided a report to Imperial College Health Partners. A summary of our findings can be found here. We found that participant’s experience of trying to find information about psychosis had generally been negative. However, participants were able to describe to us the information pathway that they would like to use in order to access information about psychosis during the early stages of becoming unwell.


What next?

We hope to be able to use what we have learnt in this project in other work that we are involved with such as research on collaborative care for psychosis and a life stories project in South London that will explore people’s journey living with psychosis and the role of services within that.


Who do I contact for more information?

If you would like more information about the study please do get in touch: