SUCCEED Africa is a research consortium that aims to develop and evaluate an enhanced package of care for people with psychosocial disabilities in the region.
It supports four countries in sub-Saharan Africa to become regional leaders in research and policy on psychosocial disabilities, with a focus on psychosis.
The project starts with the premise that people with psychosocial disabilities, their families and communities, are the “experts by experience” who are best-positioned to define their needs and how to address them, with support from “experts by profession” such as researchers, practitioners and policymakers.
One of the most pressing issues in research on psychosocial disabilities is under-involvement of people with lived experience and their families in the Global South.
Studies in which people with lived experience and people with professional experience work together have played important roles in healthcare reform in high-income countries.
However, the evidence base for ‘what works’ to improve involvement in Lower Middle Income Countries is weak at best.
In order to perform more than just lip-service to the principle of “nothing about us without us”, more Low and Middle Income Countries evidence and experience must be generated on how to enable disempowered groups to have a genuine input into research.
McPin supported the voice of people with lived experience in the research, guiding its overall direction and considering specific issues that arise.
This included setting up and supporting a Lived Experience Advisory Panel (LEAP), made up of representatives with lived experience nominated from the four countries involved in the study (Nigeria, Zimbabwe, Malawi, and Sierra Leone), as well as from international organisations representing people with psychosocial disabilities.
Mental health services • Peer research
2022: Peer research, partnership working and young people
Lived experiences in research – opportunities and problems
Interventions • Psychosis
Maudsley Charity: Living Well with Psychosis