Survivor Research

Group type: 1. Open consultative

Contact details

Named contact: Dr Jayasree Kalathil

Email address:

Telephone: 020 8640 9052


157 Erskine Road




Remit of the group

Survivor Research is a virtual collective of independent researchers and trainers, community developers and activists interested in foregrounding the voices of mental health service users/survivors, especially from marginalised and minority ethnic communities. Our particular expertise lies in bridging the gap between user/survivor advocacy and research/policy. We provide research, evaluation, training, policy and organisational development and service audits. We also provide peer support and mentoring to junior researchers and user/survivors who would like to develop their skills and gain more experiences.

Frequency of meetings

Formal meetings as required by projects. Regular informal virtual meetings.

Who can consult the group?

Anyone who is interested in user/survivor-led research or expert advice in the areas above. We are especially interested in working on projects that address issues of marginalisation and racialization.



(2014) Peer support groups to facilitate self-help coping strategies for people with dementia in extra care housing: evaluation report (Mental Health Foundation)

(2013/2008) Dancing to our own dreams: re-assessing black and minority ethnic mental health service user involvement  (NSUN)

(2013) Your experience in mind: Findings from the pilot of a survey for people accessing local Mind services and support (Mind)

(2012) The freedom to be, the chance to dream: preserving user-led peer support in mental health (Together)

(2012) Service users’ experiences of recovery under the 2008 Care Programme Approach (NSUN)

(2011) Recovery and resilience: African, African-Caribbean and South Asian women’s narratives of recovering from mental distress (Mental Health Foundation)

(2010) Achieving equality in health and social care: a framework for action (The Afiya Trust)

More about the group (optional)

Please note that we make a distinction between patient and public involvement (PPI) and survivor-controlled research. We do not “provide” PPI or work in situations where “involvement” is the driving force behind the presence of user/survivors. We are researchers and trainers who use our personal experience of mental distress and/or psychiatric services to inform our approaches to all research projects using the principles of emancipatory research and Mad Studies.