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Collaborating with people with lived experience

Oct
26
2021

4 things I learnt running a social group for people with psychosis

Lived experience facilitator Gill shares why social groups offer more value than they’ve been given credit for, as well as some tips for others looking to set one up

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Oct
19
2021

How lived experience can help revamp mental health tools

Even well-established tools can benefit from service user input found Public Involvement Lead Carolyn Asher following a recent study

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Oct
4
2021

Visualising Public Mental Health

Public mental health affects us all – this new tool pulls together all the connected components in one visual framework

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Sep
14
2021

‘It gives me an excuse to out myself’ – Jozef’s marathon story

With three weeks to go to the London Marathon one of our fab runners Jozef shares his mental health journey, why this has been a freeing experience, and the importance of self-soothing

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Sep
10
2021

Suicide “postvention”: what do we know about social support?

To mark World Suicide Prevention Day, researcher Hannah Scott shares the benefits and challenges of social support after a loss to suicide.

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Jul
28
2021

Redesigning employment support to help not hinder

Peer Researcher Gary reflects on his involvement in the Work Well project and how it compared to his own jobhunting experiences

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Jul
27
2021

Mental health data science: “My NHS patient record is a very precious thing”

A lived experience researcher working with McPin on a ‘big data’ project discusses the hidden impact of data in their life

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Jul
23
2021

Why data science is unlocking new doors in mental health research

Data could be the key to new discoveries in mental health research – but it should be handled in the right way

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Jun
17
2021

Why we need to remove this barrier to publishing in research journals

To involve people with lived experience of mental distress in the publishing of research, simple but vital changes must be made says Dan Robotham

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Jun
2
2021

Covid-19, young people and inequalities: The emerging picture

How did the Covid-19 pandemic impact different groups of young people? A member of our Young People’s Network has unearthed the data

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May
11
2021

Forgotten or ignored? Safety research in community mental health services

Have your say on the safety and quality of care provided in adult community-based mental health services

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May
6
2021

Imposter syndrome and work – it’s not a ‘you’ problem

A McPin senior researcher discusses how imposter syndrome is related to discrimination in employment systems, and how peer support and lived experience could counteract it

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May
4
2021

Why peer support could play a role in tackling unemployment: the Peer Support Employment Groups Evaluation

There are no easy solutions to long-term unemployment but peer support could help, says Dan Robotham

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Apr
28
2021

How Time To Change got me started as a lived experience researcher

McPin researcher Lisa reflects on the incredible impact Time to Change has had – both on her personally and on the wider mental health landscape - and what needs to happen next

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Apr
26
2021

Black Thrive: The benefits and challenges of having a dual role in research

Despite its challenges, being on both the project and evaluation team can bring important and unique perspectives to the project work, says Faith Amasowomwan

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Apr
19
2021

Black Thrive: Becoming a Community Peer Researcher

Although stepping out of my comfort zone was challenging, it was hugely rewarding says Davino Beckford

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Mar
22
2021

“It’s fun and enabled me to identify and express my needs”: how gameChange compares to other therapies I’ve tried

What features make virtual reality therapy effective on an individual level? Naheen who was involved in the gameChange workshops tells us about her experiences, thoughts and concerns

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Mar
15
2021

“We need to see lived experience as a strength rather than a risk”

Tanya McKay reflects on what lived experience leadership means to her and the importance of embedding lived experience into leadership roles

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Dec
7
2020

Successfully co-producing research!

The Community Navigator study is one of the best examples of co-production in research that McPin has been involved in. Here the team reflect on what worked so well.

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Dec
2
2020

We often discuss why lived experience improves research quality, but what about the ‘how’?

Rachel Temple reflects on how she has used her lived experience of mental health issues to inform her work with young people in mental health research over the last three years

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Nov
30
2020

The importance of involving people in digital mental health research

Digital mental health products need to have user involvement at the core, says Anja Hollowell

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Nov
23
2020

How to make partnership working across sectors effective

Partnership working offers great benefits but also presents challenges. Here are our reflections on how to make it a success from a partnership between the mental health and women’s sectors

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Jul
29
2020

“I belong here as much as anyone else, having lived my field of expertise 24/7 for 17 years”

Being a Lived Experience Practitioner allows me to use my past experiences to bring about change but there is still much to be done to appropriately value these roles going forward, says guest blogger Ellie Wildbore

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Jun
24
2020

Using a peer research approach to evaluate women-led peer support

Peer research not only enriched the findings from the Women Side by Side evaluation, but it also brought mutual benefits to everyone involved, says Tanya MacKay

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Jun
16
2020

Women Side by Side has helped raise awareness of mental health in a BAME community

Evaluating and facilitating a women-led peer support programme as a peer meant that Fozia Haider was able to experience the benefit of the approach first-hand

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Jun
9
2020

Overcoming imposter syndrome as a peer researcher

Our blogger reveals how her experiences of observing women-led peer support groups during the Women Side by Side evaluation helped dispel fears of feeling like a fraud

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Jun
2
2020

Women Side by Side shows what can happen if women are given the space to grow

Naima Iqbal shares her experiences of evaluating a women-led peer support programme, including how spending time with the women helped her own confidence to grow

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Feb
8
2020

Involving peers can enrich research when it’s done right

What factors are important for peer researchers to have in common with research participants? We asked Sarah Markham, an advisory group member, about her involvement in the evaluation of Women Side by Side

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Aug
2
2017

Finding the right people to ask the right questions: new survey on young people’s mental health  
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What do we really know about young people’s mental health? We know it’s a big issue. Around 1 in 10 young people have experienced a mental health difficulty. Around 75% of people with a mental health problem start developing it before the age of 181.

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May
25
2017

Using Lived Experience in Evaluating Mental Health Peer Support
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This essay was originally published as the afterword to the early research findings of the evaluation of the Side by Side programme. In it the researchers who used their lived experience of mental health problems and peer support whilst working on the evaluation reflect on how including that expertise from experience strengthened the research. 

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Apr
12
2017

Our Evaluation News

 

Over the last few weeks we’ve been giving our website a bit of a spring clean. As part of that we’ve added a new page showcasing the work we do for partner organisations including our work on evaluations. This is a growing part of what we do, helping other organisations to understand what impact their work is having and how it can be improved.

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Jan
4
2017

Expertise from Experience in Peer Review – Dolly’s Experience
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Earlier in the year MHRUK asked for our help in reviewing applications for three PhD Studentships. They wanted to strengthen the peer review process by including reviewers who could contribute their expertise from experience. We asked Gary, Dolly and Ryan to reflect on their experience of acting as reviewers, and we publish their blogs here.

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Jan
4
2017

Expertise from Experience in Peer Review – Gary’s experience
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Earlier in the year MHRUK asked for our help in reviewing applications for three PhD Studentships. They wanted to strengthen the peer review process by including reviewers who could contribute their expertise from experience. We asked Gary, Dolly and Ryan to reflect on their experience of acting as reviewers, and we publish their blogs here.

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Dec
16
2016

Research in 2016
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research-image-codesign-is-vitalTo mark the end of 2016, we’re taking a look back at some of what the McPin team has learned over the past year.

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Jan
4
2017

Expertise from Experience in Peer Review – Ryan’s Experience
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Earlier in the year MHRUK asked for our help in reviewing applications for three PhD Studentships. They wanted to strengthen the peer review process by including reviewers who could contribute their expertise from experience. We asked Gary, Dolly and Ryan to reflect on their experience of acting as reviewers, and we publish their blogs here.

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Dec
16
2016

McPin Methods
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event-image-notes-and-coffeeThe 30th of November saw the first of what we will hope will be a series of methods workshops. It brought together over 70 researchers to discuss how to integrate ‘lived experience expertise in mental health research teams’. The event was massively oversubscribed and if the fact that we had to cut short discussions before we were physically kicked out of the venue is any guide, it succeeded in its aim of stimulating debate and the sharing of ideas.

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Sep
30
2016

Influencing the debate – peer research in academic journals
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our-news-image-survey-and-dictaphoneA new special edition reporting findings from the Viewpoint survey was published in July. It includes a paper on our qualitative research into mental health discrimination experiences which was co-authored with four peer researchers. We reflect on the importance of experts by experience being named as authors, and why they are so often absent from peer reviewed journal articles.

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Jul
25
2016

Getting our Report Card – asking people what they think of you and acting on their responses, the Your Experience in Mind Survey
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Research and Evaluation Officer, Mind

Mind have been workiYour Experience in Mind pic 550x356ng together with the McPin Foundation since 2014 to evaluate the experience of people using our federated local Minds through the annual ‘Your Experience in Mind’ survey. We have 146 local Minds across England and Wales providing over 50 different types of service.

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Jun
30
2016

Why did I take on the work with the McPin Foundation?
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featureIn March this year I took on an exciting opportunity: working with The McPin Foundation as a Peer Project Assistant on a pilot scheme entitled ‘My Story, Our Future’. We will be exploring the stories of people who have themselves used or supported others accessing Early Intervention for Psychosis (EIP) services. 

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Jun
9
2016

Peer Research and Complex Needs: A Mental Health Perspective
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Read a new blog about how research on people with complex needs are using an approach that we champion at the McPin Foundation – peer research. Written by Agnes, a senior researcher in our team, it looks at some of the challenges and benefits of peer involvement in research. It was written for Revolving Doors, a charity that supports people with complex needs including mental health issues. We are really proud to support their work exploring the role of peer - otherwise known as experts by experience - contribution to research.

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Jul
3
2015

Reflections from working on an evaluation project: Your Experience in Mind
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We are keen to look at new ways of involving mental health service users and carers in research. Part of our commitment to developing new approaches has been to investigate the things that have worked well and not so well about the methods we have tried in our own research and evaluation studies. We will publish a series of methods papers describing our work. Our first methods paper describes the 'Survey Champion' approach used in an evaluation of Local Minds.

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Jun
1
2015

Reflections from 10 years of service user and survivor research event
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On Monday (1st June, 2015), St George's University of London celebrated 10 years of doing service user and survivor research with a fantastic day of discussions attended by many inspirational leaders in mental health research, from a lived experience perspective. Three of us from the McPin Foundation attended. In one of the sessions, Sarah Carr, Peter Beresford, Diana Rose and Jayasaree Kalathil reflected on the place of collaborative and survivor research in Universities. Is it safe in universities?    

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Dec
2
2013

Does service user involvement in research make a difference?

A major interest of the McPin Foundation is how service user and carer involvement in mental health research, reaching beyond taking part as participants, improves any project. It is a topic that is of interest to research funders as well, with programmes of research being commissioned by the NIHR to answer this question.

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Nov
22
2013

Doing PPI better: why we are always learning
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Last week, I attended a fantastic conference on Patient and Public Involvement in Exeter, organised by the South Peninsula CLAHRC.

The conference was a very inspiring event with a wide variety of researchers, practitioners and people who have used health services and are engaged in Patient and Public Involvement (PPI) in research.

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