Research methods

My voice matters: Co-production on the PARTNERS2 study

How research helped Dawn Allen to develop new confidence, effect change, and start her own peer support group

Coproduction

Research methods

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The PARTNERS2 pandemic data collection challenge

Members of a trial looking at improving collaborative mental health care explain why they decided to continue the trial during lockdown 

Covid-19

Improving mental health support

Research methods

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Using Lived Experience in Evaluating Mental Health Peer Support
by Andreja Mesaric | Julie Billsborough | Raj Hazzard | Richard Currie | Sarah Gibson

This essay was originally published as the afterword to the early research findings of the evaluation of the Side by Side programme. In it the researchers who used their lived experience of mental health problems and peer support whilst working on the evaluation reflect on how including that expertise from experience strengthened the research. 

Collaborating with people with lived experience

Research methods

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Our Evaluation News

 

Over the last few weeks we’ve been giving our website a bit of a spring clean. As part of that we’ve added a new page showcasing the work we do for partner organisations including our work on evaluations. This is a growing part of what we do, helping other organisations to understand what impact their work is having and how it can be improved.

Collaborating with people with lived experience

Research methods

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Lived experiences in research – opportunities and problems
by Ruth Sayers

The roles of a therapist and a research interviewer have different goals, but both involve personal conversations. And both challenge us to think about how we use our lived experience to facilitate a conversation, how it may affect what is said to us and how we interpret that

The researcher is often described as having power in an interview situation – she sets the agenda and guides the conversation, and may be perceived as having a more powerful status than the interviewee.

Research methods

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Research in 2016
by Agnes Hann | Johanna Frerichs

To mark the end of 2016, we’re taking a look back at some of what the McPin team has learned over the past year.

Collaborating with people with lived experience

Research methods

Wellbeing and connectedness

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McPin Methods
by Ian Bradshaw

The 30th of November saw the first of what we will hope will be a series of methods workshops. It brought together over 70 researchers to discuss how to integrate ‘lived experience expertise in mental health research teams’. The event was massively oversubscribed and if the fact that we had to cut short discussions before we were physically kicked out of the venue is any guide, it succeeded in its aim of stimulating debate and the sharing of ideas.

Collaborating with people with lived experience

Public Involvement

Research methods

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Using lived experience as a researcher can be “both a blessing and a curse”
by Richard Currie | Rose Thompson

Richard Currie is a researcher who is working with McPin on a number of projects that make use of both his research skills and his expertise from experience. In this brief video produced for our PPI in research week he talks with Rose about how he does this.

Research methods

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Who is a peer anyway?
by Raj Hazzard

In this blog a Lived Experience researcher reflects on the nature of the ‘peer’ in peer research. It is the latest in a series of personal reflections by McPin researchers on the use of lived experience of mental health problems  in research published as part of our week on Patient and Public Involvement in Research.  

Research methods

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Who are the ‘experts by experience’ in mental health research?
by Laura Hemming

Before Laura left the McPin Foundation in the summer 2016 to begin a PhD she wrote this blog exploring some of the issues about how we use our lived experience of mental health problems as researchers, and the labels we use as an organisation. 

Research methods

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Improving the quality of participant information sheets
by Vanessa Pinfold

Researchers at Kings College London have just produced an interesting paper, published Feb 2016.  It is available online, and can be easily accessed. It looks at the ease of reading participant information sheets over a 10 year period – June 2003 to October 2013.

Research methods

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Is collecting participant support preferences in interviews with vulnerable people helpful?
by Vanessa Pinfold

Recently, we decided to take an audit across three separate projects to see how participants responded to our questions about their preferences for support. We decided to present what they told us as an infographic. We would love for you to tell us what you think of this approach – do you think that asking participants for their support preferences as part of the research recruitment process is helpful?  Do you have any concerns ? Let us know your thoughts.  

Research methods

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#RCTDebate – what did we learn?
by Vanessa Pinfold

Our first ever public event was held on 8^th October 2015 at the Jerwood Space. This was a chance to bring people with different expertise together to consider the role of the RCT (Randomised Control Trial) in mental health research design. It was also the launch of our Talking Point series of papers – a group of papers written by survivor / service user researchers on under discussed topics. Our launched paper by Alison Faulkner has a title that speaks for itself: “RCTs: the straitjacket of mental health research?

Research methods

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Talking Point: RCTs- the straitjacket of mental health research?
by McPin Foundation

We had our first public event and the launch of our Talking Point series on Thursday 8th October 2015 at Jerwood Space in Southwark.  We looked at the role of the Randomised Control Trials in mental health research with the help of Professor Sonia Johnson from University College London and Dr Steve Gillard from St George's University of London. Alison Faulkner, survivor researcher and trainer provided an overview of her Talking Point paper and we hosted a discussion. We also had a live twitter discussion during the event: #RCTDebate.

Research methods

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Involvement in research and trials: the participants’ perspective
by Ben Gray

A crucial factor in making a piece of research successful or not is participant engagement. Do people want to take part and can you keep them engaged for follow-up if that is required? But very little research has been carried out of participant experiences of what’s involved in “taking part in research” and why people do.

Research methods

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