Public Involvement
16 2022
Why recognising good service user and carer involvement in research is so important
We reflect on how and why to celebrate good service user & carer involvement in research following the Public Involvement Awards – and what’s next
4 2022
What research questions would you like answered about paranoia?
We’re looking for people with lived experience of paranoia to share their thoughts and help shape the future of paranoia research
15 2022
Anti-racism and mental health: “All the researchers I’ve worked with have been White”
Sandra Jayacodi reflects on her experiences in research involvement and what researchers and funders can do to be anti-racist
17 2021
Why we need to remove this barrier to publishing in research journals
To involve people with lived experience of mental distress in the publishing of research, simple but vital changes must be made says Dan Robotham
Collaborating with people with lived experience
Inclusion and combating stigma
Read More11 2021
Forgotten or ignored? Safety research in community mental health services
Have your say on the safety and quality of care provided in adult community-based mental health services
Collaborating with people with lived experience
Improving mental health support
Read More30 2020
The importance of involving people in digital mental health research
Digital mental health products need to have user involvement at the core, says Anja Hollowell
Collaborating with people with lived experience
Read More18 2020
Digital inclusion must now be a priority for involvement
With the shift to remote working and video meetings looking like a long-term one, funding to bridge the digital divide needs to be built into research grants from this point on, says Dan Robotham
29 2020
“I belong here as much as anyone else, having lived my field of expertise 24/7 for 17 years”
Being a Lived Experience Practitioner allows me to use my past experiences to bring about change but there is still much to be done to appropriately value these roles going forward, says guest blogger Ellie Wildbore
Collaborating with people with lived experience
Read More16 2020
Radical collaboration, common sense & a focus on inequality: McPin’s response to the Covid mental health roadmap
The Lancet paper published today is a rapid response to an unfolding, unprecedented situation. Understanding the role and limits of research in addressing Covid’s mental health impact needs careful consideration and the input of many voices
9 2020
#PPIcovid19: Making space for lived experience in Covid research
Good involvement in research takes time. And when there isn’t time – it can degenerate into tokenism or not happen at all. We must not let that happen with Covid-19 research, says Thomas Kabir
13 2017
“The question is not if patients should be remunerated, but how”
by Dan Robotham
This recent BMJ blog explores the topic of paying patients to advise on health research, policy and service design. I was surprised to discover that there was still a debate about whether to pay patients or not!
The question of whether to pay people who bring ‘expertise from experience’ to research is nothing new.
Read More5 2017
The glass ceiling of Patient and Public Involvement
by Dan Robotham
In his first blog for us our new Head of Research and Evaluation Dan Robotham explains one of the reasons he decided to join McPin.
Health and social care research has a good public image. Polls suggest that university-based researchers are trusted by up to 90% of the public (Ispos Mori, 2014).
Mental Health Policy & Strategy
Read More16 2016
Reflections on Patient and Public involvement (PPI) at McPin in 2016
by Thomas Kabir
This year has seen the expansion of our mental health science theme of work. We have engaged with scientists developing new treatments and testing them in research studies. Are these treatments that patients want? What are the ethical considerations of developing the treatment?
16 2016
McPin Methods
by Ian Bradshaw
The 30th of November saw the first of what we will hope will be a series of methods workshops. It brought together over 70 researchers to discuss how to integrate ‘lived experience expertise in mental health research teams’. The event was massively oversubscribed and if the fact that we had to cut short discussions before we were physically kicked out of the venue is any guide, it succeeded in its aim of stimulating debate and the sharing of ideas.
Collaborating with people with lived experience
Read More2 2016
Power, Capital & Control: Co-production in research
by Richard Currie
The subject of power and control within the field of social research has long held a fascination for me. Professionally as a social researcher; as a participant in social research; and finally as disability rights activist for the past 10 years.
Read More1 2016
Public and patient involvement in research. Why not?
by Thomas Kabir
Thomas Kabir introduces the latest in our series of Talking Point papers: ‘Public Involvement in Research, Why Not’? by Kirsten Morgan. Our occasional series of Talking Point papers encourage people to consider key issues in mental health research, and provides a platform for their personal views.
Read More1 2016
First thoughts from the first #McPinMethods Workshop
by Ian Bradshaw
Yesterday afternoon saw the first of our methods workshops on ‘integrating lived experience expertise in mental health research teams’. The event was massively oversubscribed. If the fact that we had to cut short discussions before we were physically kicked out of the venue is any guide it succeeded in its aim of stimulating debate and the sharing of ideas.
Read More28 2016
What do we mean by patient and public involvement in research?
by Vanessa Pinfold
Our charity is on a mission to improve the mental health of communities everywhere – through research. We obviously can’t do this alone, and thus collaborate with many others who share our goals. In the last three years, since we established our staffed research unit, we have seen some progress with the value and role of research being given greater prominence.
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Bloggers
- Agnes Hann
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- Amy Meadows
- Amy Peabody
- Andreja Mesaric
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