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Public Involvement

May
16 2022

Why recognising good service user and carer involvement in research is so important

We reflect on how and why to celebrate good service user & carer involvement in research following the Public Involvement Awards – and what’s next

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May
4 2022

What research questions would you like answered about paranoia?

We’re looking for people with lived experience of paranoia to share their thoughts and help shape the future of paranoia research

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Feb
15 2022

Anti-racism and mental health: “All the researchers I’ve worked with have been White”

Illustration of a crowd of diverse people Sandra Jayacodi reflects on her experiences in research involvement and what researchers and funders can do to be anti-racist

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Jun
17 2021

Why we need to remove this barrier to publishing in research journals

To involve people with lived experience of mental distress in the publishing of research, simple but vital changes must be made says Dan Robotham

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May
11 2021

Forgotten or ignored? Safety research in community mental health services

Have your say on the safety and quality of care provided in adult community-based mental health services

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Nov
30 2020

The importance of involving people in digital mental health research

Digital mental health products need to have user involvement at the core, says Anja Hollowell

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Aug
18 2020

Digital inclusion must now be a priority for involvement

With the shift to remote working and video meetings looking like a long-term one, funding to bridge the digital divide needs to be built into research grants from this point on, says Dan Robotham

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Jul
29 2020

“I belong here as much as anyone else, having lived my field of expertise 24/7 for 17 years”

Being a Lived Experience Practitioner allows me to use my past experiences to bring about change but there is still much to be done to appropriately value these roles going forward, says guest blogger Ellie Wildbore

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Apr
16 2020

Radical collaboration, common sense & a focus on inequality: McPin’s response to the Covid mental health roadmap

The Lancet paper published today is a rapid response to an unfolding, unprecedented situation. Understanding the role and limits of research in addressing Covid’s mental health impact needs careful consideration and the input of many voices

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Apr
9 2020

#PPIcovid19: Making space for lived experience in Covid research

Good involvement in research takes time. And when there isn’t time – it can degenerate into tokenism or not happen at all. We must not let that happen with Covid-19 research, says Thomas Kabir

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Jul
13 2017

“The question is not if patients should be remunerated, but how”
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This recent BMJ blog explores the topic of paying patients to advise on health research, policy and service design. I was surprised to discover that there was still a debate about whether to pay patients or not!

The question of whether to pay people who bring ‘expertise from experience’ to research is nothing new.

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Apr
5 2017

The glass ceiling of Patient and Public Involvement
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In his first blog for us our new Head of Research and Evaluation Dan Robotham explains one of the reasons he decided to join McPin.

Health and social care research has a good public image. Polls suggest that university-based researchers are trusted by up to 90% of the public (Ispos Mori, 2014).

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Dec
16 2016

Reflections on Patient and Public involvement (PPI) at McPin in 2016
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ppi-talking-point-imageThis year has seen the expansion of our mental health science theme of work. We have engaged with scientists developing new treatments and testing them in research studies. Are these treatments that patients want? What are the ethical considerations of developing the treatment?

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Dec
16 2016

McPin Methods
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event-image-notes-and-coffeeThe 30th of November saw the first of what we will hope will be a series of methods workshops. It brought together over 70 researchers to discuss how to integrate ‘lived experience expertise in mental health research teams’. The event was massively oversubscribed and if the fact that we had to cut short discussions before we were physically kicked out of the venue is any guide, it succeeded in its aim of stimulating debate and the sharing of ideas.

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Dec
2 2016

Power, Capital & Control: Co-production in research
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The subject of power and control within the field of social research has long held a fascination for me. Professionally as a social researcher; as a participant in social research; and finally as disability rights activist for the past 10 years.

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Dec
1 2016

Public and patient involvement in research. Why not?
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Thomas Kabir introduces the latest in our series of Talking Point papers: ‘Public Involvement in Research, Why Not’? by Kirsten Morgan. Our occasional series of Talking Point papers encourage people to consider key issues in mental health research, and provides a platform for their personal views.

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Dec
1 2016

First thoughts from the first #McPinMethods Workshop
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Yesterday afternoon saw the first of our methods workshops on ‘integrating lived experience expertise in mental health research teams’. The event was massively oversubscribed. If the fact that we had to cut short discussions before we were physically kicked out of the venue is any guide it succeeded in its aim of stimulating debate and the sharing of ideas.

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Nov
28 2016

What do we mean by patient and public involvement in research?
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Our charity is on a mission to improve the mental health of communities everywhere – through research. We obviously can’t do this alone, and thus collaborate with many others who share our goals. In the last three years, since we established our staffed research unit, we have seen some progress with the value and role of research being given greater prominence.

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