Narrative Experiences Online (NEON)

 What is this study?

“Narrative Experiences Online” (NEOn) is a research study led by the Institute of Mental Health at the University of Nottingham. The study looks at whether reading or listening to other people’s online stories of personal recovery can improve quality of life for people with psychosis. The study also aims to find out which elements of other people’s stories are most helpful, and whether these stories can influence how mental health workers provide support.


Why is this research important?

Psychosis is a mental health problem that affects about 4 in 1000 people each year, with potential for serious long term impact on relationships, employment, lifestyle and personal identity. Stories about other people’s recovery, and the struggles they face, can inspire hope. Still, many people have never heard another person’s experience of psychosis told in their own words. This study aims to widen access to online stories of recovery, so that people experiencing such difficulties can offer hope to others.


How are McPin and people with psychosis involved?

We have formed a Lived Experience Advisory Panel (LEAP) to inform the study. This means that people with personal experience of mental health problems are involved in advising and improving the study, which will make the findings more relevant.


What is the current status of the project?

This is a five year study, running between April 2017 and March 2022.


Who do I contact for more information?

For more information about the project, please contact Dan Robotham by email:


In October 2020, the LEAP created a guide on ‘Telling a story of mental health experiences’:

Telling a story… (colour)

Telling a story… (printable B+W)